I wish I had miracle stories to share but no meds have worked for me. I sure hope there have been some better meds and better science in the intervening years.
My life includes lots of pickles and all the salt I want; drinking vast quantities of liquids; being aware of movements, positions & environments where I'm at risk for passing out; and (most importantly, I think) regular exercise in a swimming pool. In the water blood pressure isn't an issue, since the water acts on all the blood vessels equally and I'm mostly horizontal. This permits me to do vigorous exercise which would make me keel over on land.
Happy to share stories, happy to shut up :,) There's at least one other POTS person on DW, who's been dealing even with this stuff even longer: mariness.
no subject
My life includes lots of pickles and all the salt I want; drinking vast quantities of liquids; being aware of movements, positions & environments where I'm at risk for passing out; and (most importantly, I think) regular exercise in a swimming pool. In the water blood pressure isn't an issue, since the water acts on all the blood vessels equally and I'm mostly horizontal. This permits me to do vigorous exercise which would make me keel over on land.
Happy to share stories, happy to shut up :,) There's at least one other POTS person on DW, who's been dealing even with this stuff even longer: