lizcommotion (
untonuggan) wrote2013-10-28 06:33 pm
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Three Hours at the Doctor is Officially Too Long
...and I was seriously thinking about making a break for it about halfway through, but I'm glad I didn't because I did get very useful information. It was just intensely grueling.
I went to the cardiologist for my dysautonomia/POTS and, okay, I was eight minutes late because a road I needed to use was closed for 10 minutes and it would have taken longer to go around by the time it became obvious how long it was going to take. A little warning would have been nice. This is a running theme. Then I had about twenty minutes of filling out two pages of paperwork (tiny tiny writing) about updating my symptoms. Then I went back, half an hour after my appointment was supposed to start. Oops. Mea culpa. I've got that.
And okay, a cardiologist's office, I can see EKG's being routine even if they're annoying and I hate the little sticky things. And I can even see the echocardiogram being called for, though I really did not enjoy the little paper gown up top with no bra on while the person shoved lube all over my chest. (He was very nice though, and didn't expose me, but it was still OH HAI PTSD.)
Saving grace at this point: while I was waiting for him to come move me to another room, I was spinning yarn. When I came back we had a mini-talk about spinning, because his grandmother used to spin.
Then I waited for another half hour. This is when I thought about doing a runner, but it seemed kind of pointless at that point and it takes three weeks to get an appointment with this guy.
At long last, they came and told me I would get to do...a stress test! In clogs and jeans! Word to the wise: if you have a music player with you, ask if you can listen to music during a stress test. Lady Gaga is the only thing that kept me going. Felt like I was going to pass out afterwards (thank you, dysautonomia).
Then I waited some more. At last I pulled out my knitting, which I had been saving for the car because I only had about two rows left before the cast off. I did about five stitches and the doctor came in. Obviously it's magic.
Good things:
I went to the cardiologist for my dysautonomia/POTS and, okay, I was eight minutes late because a road I needed to use was closed for 10 minutes and it would have taken longer to go around by the time it became obvious how long it was going to take. A little warning would have been nice. This is a running theme. Then I had about twenty minutes of filling out two pages of paperwork (tiny tiny writing) about updating my symptoms. Then I went back, half an hour after my appointment was supposed to start. Oops. Mea culpa. I've got that.
And okay, a cardiologist's office, I can see EKG's being routine even if they're annoying and I hate the little sticky things. And I can even see the echocardiogram being called for, though I really did not enjoy the little paper gown up top with no bra on while the person shoved lube all over my chest. (He was very nice though, and didn't expose me, but it was still OH HAI PTSD.)
Saving grace at this point: while I was waiting for him to come move me to another room, I was spinning yarn. When I came back we had a mini-talk about spinning, because his grandmother used to spin.
Then I waited for another half hour. This is when I thought about doing a runner, but it seemed kind of pointless at that point and it takes three weeks to get an appointment with this guy.
At long last, they came and told me I would get to do...a stress test! In clogs and jeans! Word to the wise: if you have a music player with you, ask if you can listen to music during a stress test. Lady Gaga is the only thing that kept me going. Felt like I was going to pass out afterwards (thank you, dysautonomia).
Then I waited some more. At last I pulled out my knitting, which I had been saving for the car because I only had about two rows left before the cast off. I did about five stitches and the doctor came in. Obviously it's magic.
Good things:
- new meds to help with the painful swelling in my hands and feet (which woke me up at 4 am, agh)
- new meds will also help make it easier for me to exercise
- meeting once a week with an exercise physiologist in their office to increase my oxygen capacity, which is limited due to the pooling of blood in my extremities (rather than my body moving all my blood/oxygen around efficiently)
- when I am sitting, I have to stand up and move around every half hour at least
- I get to eat even more salt (and salty water in particular)