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untonuggan) wrote2014-09-12 02:31 pm
untonuggan) wrote2014-09-12 02:31 pm
Entry tags:
WOO
So I have had such trouble finding POTS doctors for, like, ever.
Apparently the key search term is not anything to do with dysautonomia. It is "electrophysiologist cardiologist" or some variation of that.
Also because they think the general public will have trouble remembering that, the professional association associated with that has a horrible website.
BUT there is a website for the Heart Rhythm Society which is basically the same thing, because even though it basically spends the whole time talking about atrial fib and arrhythmias, when I have called any of the doctors that they have IN THEIR DATABASE OF DOCTORS, the receptionists KNOW WHAT POTS IS, they do tilt table testing in house, and they can schedule me with a doctor who specializes in the weird thing I have.
So basically it's a secret society of doctors who treat POTS but don't advertise? IDEK. Like nowhere does it say anywhere "POTS" or "dysautonomia" or "hypotension" or whatever, BUT THEY TOTALLY TREAT THOSE THINGS.
Did I mention that their database of doctors appears to be international?
WHY ARE THEY HIDING THEIR MAGIC POWERS?
P.S. I think it's because *they* think that POTS is a "hysterical" disorder but people with "real problems" who come in with legit complaints can be diagnosed through science rather than diagnosing themselves on the internet ahead of time and talking in science terms. I could be wrong, but I am suspicious.
Hopefully I will at least be able to get prescriptions for the medications that keep me upright and, if this doctor wants me to exercise, he will do something other than say, "Go forth and do the thing that makes you feel like you are dying a horrible death." (My translation of his words mean for me in actual life.)
Apparently the key search term is not anything to do with dysautonomia. It is "electrophysiologist cardiologist" or some variation of that.
Also because they think the general public will have trouble remembering that, the professional association associated with that has a horrible website.
BUT there is a website for the Heart Rhythm Society which is basically the same thing, because even though it basically spends the whole time talking about atrial fib and arrhythmias, when I have called any of the doctors that they have IN THEIR DATABASE OF DOCTORS, the receptionists KNOW WHAT POTS IS, they do tilt table testing in house, and they can schedule me with a doctor who specializes in the weird thing I have.
So basically it's a secret society of doctors who treat POTS but don't advertise? IDEK. Like nowhere does it say anywhere "POTS" or "dysautonomia" or "hypotension" or whatever, BUT THEY TOTALLY TREAT THOSE THINGS.
Did I mention that their database of doctors appears to be international?
WHY ARE THEY HIDING THEIR MAGIC POWERS?
P.S. I think it's because *they* think that POTS is a "hysterical" disorder but people with "real problems" who come in with legit complaints can be diagnosed through science rather than diagnosing themselves on the internet ahead of time and talking in science terms. I could be wrong, but I am suspicious.
Hopefully I will at least be able to get prescriptions for the medications that keep me upright and, if this doctor wants me to exercise, he will do something other than say, "Go forth and do the thing that makes you feel like you are dying a horrible death." (My translation of his words mean for me in actual life.)