Jul. 9th, 2013

untonuggan: Person with prosthetic legs doing pilates (aimeepilates)
Intro

So yesterday I got Officially Diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), a form of Dysautonomia, which is apparently what has been causing the dizziness and the falling down and many things that are the opposite of helpful. tw: talkin' about medical tests )
I thought I'd document here what I actually experienced so people who are considering similar tests can hopefully feel less of a sense of DOOM (or a need to sing Grr's Doom song), and also lay out what the Dr told me about some POTS stuff so if anyone is facing a POTS diagnosis then they also won't feel as intimidated by all the scary things on the internet message boards.

What happens during a tilt table test?

tw: medical procedure discussed in detail )

What does it feel like when it happens?

tw: more about medical procedures )

So what's your prognosis? Are you stuck as the Magical Falling Liz for all time?

Dr. says long recovery process, but improvements possible. No promises how much, probably because we live in the Land of Lawyers. He did say I'd probably start feeling better in 5-6 months. He put me on some meds and in a month we're going to start a conditioning program to help me be better at Standing. *fingers crossed*

Check back later for more posts on the Saga of Dysautonomia.

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