untonuggan: a hand drawn/colored happy cane (disability cane happy)
[personal profile] untonuggan
So it's looking like I'm SOL regarding pain medication. I'm on Lyrica already; I can't take any kind of anything that messes with serotonin; NSAIDs are out with my gut the way it is; don't want opiates because All The Reasons.

My doctor wants me to go to a pain clinic; I'm not sure what they'll do other than offer me strong opiates or something and give me physical therapy, but I'm supposed to be getting PT for my dizziness so yes that would be out for insurance reasons alone, let alone me going bananas. Anyone have experiences to offer on pain clinics?

In the meantime, my side effect journey of daisies and rainbows and leprechauns has made me leery of adding more chemicals to my internal chemistry project. Like, I've *always* hated being on this many meds and just kind of grinned and born it. But seriously? This is frelling ridiculous. And so, yes. I'm looking for non-medication ways to keep this under control, at least until a neurokinin-1 antagonists maybe comes on the market approved for pain management. *crosses fingers* But that could be awhile.

So yes, I'm soliciting suggestions in this post for pain management. I will do my best not to immediately rule them out because, say, I've tried acupuncture and it didn't work. Nothing is too woo for this post. I just want a working list to, er, work off of so I can fucking knit and spin regularly again. (I have knit TWO ROWS this week and spun nothing and it's making me cranky, who knows what I would have done without video games.)

Thank you, dear circle, for all your support!

PS fewer seizures yesterday! woo!

PPS Yes standard disclaimer regarding I know you're not medical professionals blah blah won't sue you blah blah check with my doctor blah blah.

Date: 2013-08-10 10:42 pm (UTC)
rainbow: (Default)
From: [personal profile] rainbow
i can't take most meds (too many horrible allergies and side effects), and what i've used the most is pressure point stimulation. it releases endorphins, which reduces effective pain levels for me.

it also makes me a bit loopy sometimes, though.

for ra and fibro flareups, i use turmeric, as a food rather than as a supplement: add a spoonful to a large bowl of soup, add 1/4 tsp to a cup of cocoa or spiced tea, etc., up to about 2 tsps/day as needed (less if my ears start to ring.)

i also actively avoid certain foods/familiest to reduce my pain levels. my fibro is triggered by gluten, corn, and potatoes. my ra is triggered by peppers and tomatoes (but not potatoes. weird, huh?). my ic is triggered by peppers, but not much by tomatoes or peppers. gluten is a general autoimmune reaction causer for me and triggers migraines; so does aspartame (again, for *me*). oh, gluten also causes neuropathic pain for me. food additives (preservatives, colours/flavours, flavour enhancers, prettymuch anything that's in commercial processed food but isn't food itself? pain trigger :( )

diet generally keeps my pain levels below a 5 or so (they used to be at 5-8 on a daily basis), and most often they're at 0-3 now.

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