The Plan

Jul. 29th, 2013 08:57 am
untonuggan: a raptor silhouetted against a sunet over the beach (bird sunset)
After a night's sleep, here's my plan. I pursue the trauma-NES (non-epileptic-seizure) link with psychiatrist/therapist because it can't hurt to look (unless a rude doctorman is telling you to in a don't question my authority you are just crazy pants way), as it is suspiciously timed with the Crohn's exams bringing up all the PTSD stuff.

Also, I look and see if any of my other conditions could be causing this. Or meds. Or med interactions.

This brought to you by crying on the stairs about my assailant from 10+ years ago at midnight.

Also also as positive reinforcement for dealing with all this SHIT, I look into getting a service dog.

untonuggan: Black and White Image with a mug, text reads "Come let us have some tea  and continue to talk about happy things" (tea happy things)
Thank goodness. If you want full details of really know-nothing doctors you can check it out on [community profile] fucking_docs .

For how I'm feeling, read on! I am doing ok, still seizing or pseudo-seizing or NESeizing wtf you want to call it technically.

Expandtw: description of seizure experience, fuckin' docs, diagnoses, hospitals/medical stuff, epilepsy, not-epilepsy )Here is what is helpful:
  • good thoughts, hugs
  • information on seizure service dogs (I know there was someone who had some info but I've lost the email)
  • information on weird types of seizures
  • rec's for good places to go for weird seizure disorders in the mid-Atlantic Region (near NoVa ideally) AND/OR places to fucking avoid
  • coping tips for seizures
  • people who might be good resources for sharing their own experiences with seizure stuff (but please, ask them first)
  • info on: Lyme and Seizures; POTS and Seizures (feel free to give me targeted internet search results here!)
Here is what is not helpful
  • horror stories
  • anything to do with how you think it probably is a conversion disorder/pseudo-seizure/etc. Just don't want to hear it. Sorry! Not enough ticky boxes have been crossed off for me to cross that bridge.
  • advice/info not listed in the "helpful" section. It might actually be helpful, what you are thinking, but I only have about a teaspoon of cope right now and it is taken up by having had 10 "episodes" in an hour earlier. So please stick to the list. Thanks!

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untonuggan: Lily and Chance squished in a cat pile-up on top of a cat tree (buff tabby, black cat with red collar) (Default)
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