untonuggan: a hand drawn/colored happy cane (disability cane happy)
[personal profile] untonuggan
So it's looking like I'm SOL regarding pain medication. I'm on Lyrica already; I can't take any kind of anything that messes with serotonin; NSAIDs are out with my gut the way it is; don't want opiates because All The Reasons.

My doctor wants me to go to a pain clinic; I'm not sure what they'll do other than offer me strong opiates or something and give me physical therapy, but I'm supposed to be getting PT for my dizziness so yes that would be out for insurance reasons alone, let alone me going bananas. Anyone have experiences to offer on pain clinics?

In the meantime, my side effect journey of daisies and rainbows and leprechauns has made me leery of adding more chemicals to my internal chemistry project. Like, I've *always* hated being on this many meds and just kind of grinned and born it. But seriously? This is frelling ridiculous. And so, yes. I'm looking for non-medication ways to keep this under control, at least until a neurokinin-1 antagonists maybe comes on the market approved for pain management. *crosses fingers* But that could be awhile.

So yes, I'm soliciting suggestions in this post for pain management. I will do my best not to immediately rule them out because, say, I've tried acupuncture and it didn't work. Nothing is too woo for this post. I just want a working list to, er, work off of so I can fucking knit and spin regularly again. (I have knit TWO ROWS this week and spun nothing and it's making me cranky, who knows what I would have done without video games.)

Thank you, dear circle, for all your support!

PS fewer seizures yesterday! woo!

PPS Yes standard disclaimer regarding I know you're not medical professionals blah blah won't sue you blah blah check with my doctor blah blah.

Date: 2013-08-11 10:57 am (UTC)
raze: A man and a rooster. (Default)
From: [personal profile] raze
I have a friend who swears by Voltaren gel. It would need a script but it seems to really help. She also uses some kind of patch - Salonpas, maybe? - but that's more for specific muscle knots (I think?) and localized pain rather than whole-body issues.

Is this more arthritis pain, muscle pain, or nerve pain? I find that SAM-e (which a medical doctor suggested) and modifying the diet to reduce foods with a high inflammatory index has been helpful to my joint pain. Or, I should say, "can be," since I am bad at lastingly staying away from some foods. Also a disclaimer on SAM-e: some types of mood instability do not play nicely with it. My own included. It turns me into a manic rage-monster that does things like get out of the car in traffic to yell at somebody who honked; I have found in a repeated attempt that the symptom dies down within a few days, but it's a hell of a bad psychiatric side effect even for a brief duration. So you may want to run it by your psych if you opt to try it.

Also, massage can be extremely helpful, to echo the folks above. I went to a woman who did very aggressive, deep massage. It would be uncomfortable during the process, but after, SO much better. She had me to a point where my feet didn't just constantly ache for the first time in years. Unfortunately, I am so sensory defensive and touch averse that I couldn't handle it psychologically, because every session would make me just totally unhinged by the time it was over. But even as someone who HATED it, I will say it definitely worked.
Edited Date: 2013-08-11 11:00 am (UTC)

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