Jul. 28th, 2013

untonuggan: Black and White Image with a mug, text reads "Come let us have some tea  and continue to talk about happy things" (tea happy things)
Thank goodness. If you want full details of really know-nothing doctors you can check it out on [community profile] fucking_docs .

For how I'm feeling, read on! I am doing ok, still seizing or pseudo-seizing or NESeizing wtf you want to call it technically.

tw: description of seizure experience, fuckin' docs, diagnoses, hospitals/medical stuff, epilepsy, not-epilepsy )Here is what is helpful:
  • good thoughts, hugs
  • information on seizure service dogs (I know there was someone who had some info but I've lost the email)
  • information on weird types of seizures
  • rec's for good places to go for weird seizure disorders in the mid-Atlantic Region (near NoVa ideally) AND/OR places to fucking avoid
  • coping tips for seizures
  • people who might be good resources for sharing their own experiences with seizure stuff (but please, ask them first)
  • info on: Lyme and Seizures; POTS and Seizures (feel free to give me targeted internet search results here!)
Here is what is not helpful
  • horror stories
  • anything to do with how you think it probably is a conversion disorder/pseudo-seizure/etc. Just don't want to hear it. Sorry! Not enough ticky boxes have been crossed off for me to cross that bridge.
  • advice/info not listed in the "helpful" section. It might actually be helpful, what you are thinking, but I only have about a teaspoon of cope right now and it is taken up by having had 10 "episodes" in an hour earlier. So please stick to the list. Thanks!

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untonuggan: Lily and Chance squished in a cat pile-up on top of a cat tree (buff tabby, black cat with red collar) (Default)
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